Owch! Hyperacusis

Copyright: doglikehorse / 123RF Stock Photo
Copyright: doglikehorse / 123RF Stock Photo

One of the more ironic aspects of my hearing loss is that I also have something called hyperacusis.  I know, I hadn’t heard of it either.  It basically means a hyper-sensitivity to some normal everyday sounds, so that they become distressing or literally painful.  I over-react alarmingly to the sounds of crockery or cutlery being put back in our kitchen drawers, for instance, or the clatter of pots and pans being stacked for drying on the draining board (especially if they slip and crack against each other – aaargh).  To me these everyday noises sound deafening, but more than that they induce real pain in my ears.  I’ve trained myself to refrain from yelling at my husband to STOP, because he’s not making a clatter deliberately.  Indeed, other people wouldn’t think it was a clatter at all.  Instead I take my hearing aids out (just for a few minutes). Continue reading

Why lip reading isn’t a golden ticket

Copyright: mistac / 123RF Stock Photo
Copyright: mistac / 123RF Stock Photo

Nigel and I have a private shorthand for those moments when he knows that I haven’t a clue what he just said but I’m not admitting it.  I know I should ALWAYS admit it but saying “sorry, I missed that” a thousand times a day gets very wearing.

The shorthand is “Lions in the Sky” because once, aeons ago, we were in the car together and he pointed out (something) in the sky.  It sounded like “lion” to me, but that didn’t make a lot of sense.  A lion?  In the sky? I couldn’t see anything in the sky, much less a lion, so I copped out and made some confirmatory response.  You know the sort.  “Oh, yeah”.  “Mmm”. Continue reading

Hearing aid alert

Copyright: carmenbobo / 123RF Stock Photo
Copyright: carmenbobo / 123RF Stock Photo

A few months ago one of my hearing aids began occasionally playing up, or rather occasionally switching off, for no apparent reason.  After twenty-odd years of using hearing aids I’m adept at solving the little things that can go wrong (faulty batteries, or wax or condensation blocking the tubing are the most common problems) but it wasn’t any of those.  Mysteriously, left to its own devices (outside my ear) for ten or fifteen minutes the aid would switch itself on again.  Then, it would work perfectly normally for a week or so and then – whoops – go (temporarily) off again.  It was a minor irritant.  When it happened I’d tell myself to contact audiology to see if it needed servicing or something, but I never got round to it. Continue reading

“If you have a question please phone our customer service hotline” – or not.

Copyright: yayayoy / 123RF Stock Photo
Copyright: yayayoy / 123RF Stock Photo

Alex Orlov recently wrote a post for the Limping Chicken in which he bemoaned the total inability of a variety of companies to respond to his requests to text him rather than phone him.  The Tesco delivery driver, IKEA, BT, BUPA, the Halifax – they all ignored his explanations that he couldn’t hear on the phone and proceeded to ring him anyway.  You can read his post here.

I so sympathise.  I don’t personally ask companies to text me because our house is off the map for mobile phones.  You can usually get a signal if you go to the top floor and stand near the window, holding your phone at ceiling height but – strangely enough – I don’t stand there all day just in case someone sends a message.  If a company wants a mobile number for text messages I pretend I don’t have one.

What drives ME to distraction is the very similar problem of companies insisting that you telephone their call centre if you have a problem. Continue reading

Walking with Roger

After a summer of knee problems (Nigel’s) he and I have returned to the fells.  Fell walking is something we both love and there are lots of excellent opportunities within reach.  The Lake District is our favourite place and we’ve managed to fit in three trips in recent weeks.

Of course, out came the Roger pen, on its first fell walking trial.  At first I had a bit of a panic.  We were putting our boots on at the car – Nigel at the back and me at the front passenger side – when I heard this really loud breathing.  I mean REALLY loud breathing – haaargh, haargh, haargh.  Had he been taken ill?   “Are you OK?” I called out, hopping (one boot on, one boot off) round to the back of the car.  Continue reading

Blogger recognition award

Screenshot_2016-07-27-02-36-04.jpg

I am amazed and delighted to have been nominated for a blogger recognition award.  How great is that?  I’ve been nominated by Laura Lowles at The Invisible Disability and Me.  THANK YOU, Laura.  Laura started her blog after being diagnosed with sudden hearing loss in her twenties.  Her blog posts cover a myriad of topics, including the fitting of her cochlear implant and experiences with it since.  There are also posters, links to useful organisations and much more besides.  You can find Laura’s blog here.

There are some rules for accepting the award, including saying something about why you started your blog and giving a tip or two to new bloggers.

I started More Than A Bit Deaf six months ago after about a year of indecision.  I have always loved to write and, since my hearing loss has worsened to really quite significant levels, I felt I had lots to say about different aspects of deafness.  A blog seemed like a good idea – in theory – but the idea of putting personal stuff on the internet was quite scary.  And could I cope with the technology?  People who know me know that I’m not the most computer literate person in the universe, but I got some books out of the library and had a go.

Actually there was more chance to it than the last paragraph suggests.  Do you ever make ridiculous pacts with yourself about whether you’ll do something?  One day in the “shall I, shan’t I” period I was driving home with the dog after our walk.  Turning into the High Street I said to myself “if there is a car parking space outside the library I’ll get the books on blogging” – and there was!  So now you know I am completely crazy and you’ll never read the blog again, but it’s true.

A huge thank you to the many people who have been so supportive of my efforts.  I’m very glad I plucked up the courage and wrote the first post.

Advice to new bloggers?  Don’t trust there being a parking space outside the library.  Seriously, I would say just do it.  What is there to lose?  In all likelihood you will make friends, find other fascinating blogs and really enjoy yourself.

You are also meant to nominate fifteen other blogs for the award.  I’ve failed dismally at this.  Before I started More Than A Bit Deaf I rarely read a blog and, although I’m rapidly finding other blogs I love and follow, fifteen is too much of a stretch.  So here is my list of blogs I’d like to nominate.

The Limping Chicken – the biggest deaf blog in the world, lays eggs every week day.

I’d never heard of Charlie Swinbourne’s blog, the Limping Chicken, until I started blogging myself.  I can’t be the only one, in fact I know I’m not the only one because my two closest hearing loss friends hadn’t heard of it either.  Charlie is a film-maker and journalist who describes the Chicken as a news and opinion website.  He is Deaf and grew up in a Deaf family.  Quite a lot of the content is about Deaf culture and that has been part of its appeal for me, because it is a world I know very little about.  But he also carries posts by adult-onset hearing loss people, like me, and indeed has included one of my own posts, for which many thanks Charlie.

If you want to know the news about the deaf world, and to be entertained and have your thoughts provoked – read the Limping Chicken.

Living With Hearing Loss

Shari Eberts is a US blogger who writes regularly about all aspects of living with adult onset hearing loss.  Living With Hearing Loss is less of a personal blog (although her own hearing loss story is firmly woven into it) than a series of very practical hints and tips on every situation you can think of.  Shari set up the blog as part of her ambition to act as an ambassador and campaigner about hearing loss.  She’s a role model for all of us.

Teresa Garratty’s posts on the Limping Chicken

So far as I can tell Teresa only posts on the Limping Chicken (??).  Her posts are often laugh-out-loud funny and specialise in a sort of cartoon format with lots of wacky illustrations.  Try “An article that’s not about the EU referendum thing – honest” or “The Ten Stages of Tinnitus” or…..any of them really.  Click here.

The Happiness Project

You either like self-improvement books or you loathe them.  I’m a sucker for some of them myself.  I avoid the ones that claim you can change your life completely in seven days but Gretchen Rubin’s Happiness Project isn’t like that – she focusses on things you can do over time to make yourself feel happier, more content, more fulfilled – however you want to describe it – including choosing and carrying through on challenging projects (like this blog was for me).  There is a blog (hence the nomination) but it is two of Gretchen’s books I particularly like (The Happiness Project and Happier At Home).  They aren’t written for people learning to live with hearing loss but I find that there’s a lot in them that is really helpful if you are.  We need positives to counteract the negatives more than most.

Lost in Lyon

Moving away from deafness now – I’m fascinated by the way that cultures so close to each other geographically and so similar in many ways can be so utterly different in other ways.  I find it a useful antidote to “we always do it this way” thinking.  Lost in Lyon is a blog exploring the myriad differences between a Brit mindset and a French mindset, seen through the eyes of Emily, a British woman who moved with her husband and family to a village near Lyon in December 2013.  It’s often funny, always interesting and very well written.  Find it here.

So thank you again, Invisible Disability, I’m pleased you liked More Than A Bit Deaf.

PS The rules are…..write a post…..acknowledge the blogger who nominated you…..give a brief story of how you started blogging…..give two pieces of advice to new bloggers…..nominated 15 deserving bloggers.  All done!

 

 

 

Pack your resilience

Just back from holiday.  You wouldn’t believe all the bits of kit I take with me for peace of mind, especially if I’m going abroad.

holiday hearing aid kit
holiday hearing aid kit

As well as the normal essentials – hearing aids, spare batteries – I take:

  1. Cleaning kit – for getting bits of wax out of ear moulds, and stuff like that.
  2. Puffer – for getting condensation out of the tubing.
  3. Spare tubing – in case it needs replacing for some reason.
  4. Spare hearing aids. THANK YOU NHS.  My local hospital now provides free spare pairs on holiday loan – how wonderful is that?
  5. Spare ear moulds. In case I lose the ear moulds?  Ridiculously unlikely but you never know, and whilst you could probably buy hearing aid tubing in many places abroad my ears are peculiar to me and the moulds irreplaceable.  They are old ones, and not a perfect fit, but they would do the job for a while.
  6. Drying tub and desiccator tablets – if going somewhere hot or if I might get sweaty (for example, if hiking). Drop your hearing aids in the tub overnight, with one of the tablets, and they are safely thoroughly dried.  Damp hearing aids don’t work and can be permanently damaged.
  7. Nowadays I also pack the Roger pen, the Roger pen receiver and the two sets of charging equipment they come with.

Continue reading

Sport and me (deaf woman at a yoga class)

Spending every afternoon and evening glued to the Olympics had me pondering about sport.

I was a child in an era when school sport meant team sports (netball in the summer and hockey in the winter) or gymnastics.  I was no good at any of them.  On the hockey pitch on damp, cold, Co Durham afternoons I first learnt that I am completely incapable of anything that involves hitting a ball with a piece of wood.  I just can’t do it.  I’m equally bad at tennis, badminton, rounders, crazy golf…..you name it. Continue reading

Positives to counteract the negatives

Copyright: hayaship / 123RF Stock Photo
Copyright: hayaship / 123RF Stock Photo

Sometimes hearing loss is very hard on the self-esteem.  I’ve always considered myself a fairly confident and resilient human being but sometimes being deaf really tests that.  It’s hard to feel confident when I’m on the edge of conversations, trying to get a foothold.  It’s hard not to feel a big sense of loss about some of the things I can’t do any more (chatting easily to my husband whenever I want to is top of my list of things I would like back).

But what do you do?  My philosophy is that there’s no point giving into it.  It’s my one and only life and I’m determined not to let my ears spoil it. Continue reading