About this blog

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Hi, I’m Vera.  In my early 20s I had a bad dose of the flu, which left me with tinnitus (ringing in the ears) and some loss of high pitched hearing…… I remember realising I couldn’t hear bird song any more.  I was warned things might deteriorate, and they did.  Forty years later I am severely to profoundly deaf for higher frequency sounds, and moderately deaf for most of the rest.  It’s been a slow progression.  I didn’t wear hearing aids until I was 40…..first one analogue hearing aid, then two, then two digital hearing aids, subsequently (more than once) replaced with more powerful versions.  They helped enormously for a long time but my hearing continued to deteriorate and I now have a cochlear implant in my right ear.

I started the blog in February 2016, in pre-implant days, and carried it through until July 2017.  Then I had a rest!  It started again in November 2017, focussing mainly on the story of the implant.

So that’s me.  Sixties.  Retired.  Living in a village in Yorkshire with husband, Nigel, and dog, Izzy.  Determinedly carrying on, trying to see the funny side.  Doggedly trying not to let my ears stop me doing stuff.

I’d love to hear from you – leave a comment below.

 

 

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28 thoughts on “About this blog

  1. Hi Vera.
    Thanks for the prompt reply.
    Yes I’m going to book in with Specsavers as they give a 90 day trial.
    I have got 2 phonak digital aids at the moment with open domes as the filled in moulds play havoc with me ‘hearing’ my own speech – sounds similar to your experience. I’m now finding that I need more volume than I can get with these aids due to feedback. I have heard that the receiver in canal aids may be better? We shall have to see. I will let you know – the price isn’t an issue if it does the job!

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  2. Hi Vera. I have been following your posts for a while and it’s great to see someone in a similar position to myself and your ways of coping.
    What experience do you have with private hearing aids? My NHS ones are ok but I’m sure there is better technology out there? Any advice would be appreciated. Thanks Joanne

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    1. Hi Joanne. I had private hearing aids when I was working. I needed digital aids before they were available on the NHS so I was referred to Access to Work and they and my employer, between them, funded two digital aids. When I was about to stop work, seven years ago, I got myself referred back to the NHS, then when my hearing aids needed replacing the NHS took over. My experience of the difference is that the private sector give you a lot more choice. I was able to borrow different types of hearing aids to try out, before deciding on the best ones for me. With the NHS it was much more “this or nothing”, indeed it was some time before I could get aids I was happy with. To begin with the NHS audiologist insisted I should persevere with a make that severely affected my speech comprehension (for the worse) and “boomed” terribly. I hated them and was persistent in saying they were wrong for me. Eventually they gave in and accepted what I was saying, and I was then given Phonak Nathos SP W, which have been fine. Had that not happened I think I would have been back at the private sector, whatever the cost.
      You could always just make an appointment with a private audiologist and see what happens?? I’d be really interested to hear about it, if you do.
      Very best wishes and thanks for reading the blog.

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  3. Hear hear! (Sorrow about the awful pun).
    Every time I read one of Vera’s blogs/articles I wonder at the incisive insights she gives of our deaf lives. She shines a light in to our world with brilliant, gentle humour – bravo! More, more!!

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  4. Hello Vera, I have noticed over the past few years as my hearing has deteriorated that I can no longer listen to music as the notes all sound out of tune. The only music I can recognise is if a song is sung that was popular in my youth! Do you know if this is common in people with severe hearing loss.

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    1. Hello Patricia. Yes, I think it IS common, certainly it applies to me and other people I know (with hearing loss) have said the same thing. I even think the phenomenon has a medical name but, try as I might, I can neither remember it or find it on the internet. I’ll keep looking and let you know when I find something. All best wishes. Vera.

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      1. Hi Patricia. I can’t help Vera out with an official name for this – suspect I just think it’s the musical memory kicking in.Highlight of my week is often driving on my own, windows firmly shut, singing along at top of my voice to CDs from the 60s! Can’t really hear the radio now but cue me into the Beatles and I’m off!

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  5. Thank you for your blog. I too have mainly a high frequency hearing loss and some tinnitus (mainly musical tinnitus!) which was probably caused by measles as a child. It became evident at work when kept getting phone numbers wrong and causing confusion! I too have a dog and love walking with her and meeting people and having doggy conversations! The telephone is difficult and so very rarely answer it as cannot tell what people say but if it is a number I recognise then can phone back on my Doro smartphone which came with earphones and that is marginally better! I have NHS hearing aids but do not use them much as do not find they help as they amplify the sounds I already hear more than the ones I cannot hear! The Hearing Therapist tells me constant wearing with improve that…….. But it hasn’t.
    I also have the silent alert smoke alarm and discovered after eight years that they have two batteries in the ceiling alarms! I had had someone changing just one in each…….
    Josie

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    1. Hello Josie. One of the nicest things about blogging is when people in a similar situation get in touch to say hi, so thanks very much. I’m pleased you like the blog. On your hearing aids issue I was once given aids by the NHS that were absolutely hopeless. The audiologist kept stressing that it was just a case of getting used to them, so I tried, but to no avail. Eventually they relented and let me try another model. It was night and day – suddenly I had hearing aids that actually helped again. So I would advise not giving up on the situation but going back to audiology and stressing that you have tried but are not getting anywhere. There will be other models they could offer. Good luck anyway, and thanks again for getting in touch.

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  6. Hello Vera
    I too read your blog after seeing the article in Action on Hearing Loss and it struck a lot of chords with me – late 50s, severe to profound age-acquired hearing loss, long-suffering patient & supportive husband, cat and dog lover – and I have been thinking about starting my own blog too. Well, more probably a dog-blog for Elmo, my marvellous Hearing Dog for Deaf People. As you say, dog walkers are a sociable bunch and an assistance dog opens many previously closed doors, metaphorically and physically. So keep up the good work with the blogs and I will let you know if I manage to launch one myself, following your excellent example.
    Deb

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    1. Hello Deb. Goodness, it sounds like we are the same person existing in different bodies! Thanks so much for getting in touch. Your dog blog sounds like a fantastic idea, so let me know if you launch it and I will be one of your first followers. Best wishes. Vera.

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    2. Hi! I am severely deaf and awaiting a hearing dog, so looking forward to the future now!
      Vera I love your blog. Read one only today in action for hearing loss mag entitled “my invisible world”. My life exactly. Sure wish more hearing people would read this and gain a real insight. Thank you too for the humour in your articles!

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  7. Hi Vera, I have just signed up to your website and was amazed to find out that your early hearing loss was exactly like mine, flue, tinnitus, hearing loss in high frequencies. The only difference was I was in my early 30’s and had just had my third child. I hope to start lip reading classes quite soon if only to find like minded people!

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    1. Hello Pat. I’ve never met anyone with a similar hearing loss history so it’s great to hear from you. I found lip reading classes great fun, so I hope you do too. It’s good to meet people who know how it feels. Very best wishes. Vera.

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  8. Hello Vera, I just read your article in the Action on Hearing Loss. I enjoyed it very much. You have done such a lot. Congratulations on launching your blog.
    Theresa

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  9. Hi Vera. My dad and I just had dinner. We were talking about a friend of his who is losing her hearing, so we visited your blog when we got back to his apartment. He’s going to pass your address along. Hope all is well there, Todd

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    1. Hi Todd. Great to hear from you. Give my best to your dad – I hope his friend finds the blog helpful. We are fine thanks….the sun shines and the ground has finally dried out after our long wet winter. Yesterday we were fell walking in the Lake District, which was wonderful. Love to all the Kovaks and Eastons.
      Vera

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      1. hi vera im just like you with my hearing im due to go in for a cochlear implant soon what is your take on them i would like your thoughts on it when i read your page on actiononhearingloss it was like reading about my self maureen moss

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      2. Hello Maureen. I was tested for a cochlear implant in 2015. The result was that my hearing wasn’t quite bad enough to benefit from an implant then, but they encouraged me to go back when there was further deterioration. So it’s something I’m thinking about for the future. Good luck with yours – when do you go in for the operation? Vera.

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